Thursday, July 3, 2014

Supporting the HDSA and Team Hope

The Huntington's Disease Society of America (HDSA) is a very important part of many families that are dealing with Huntington's Disease. It can be summed up in their tag line "Help for today, Hope for tomorrow". That is what they strive to do. Provide help for those families dealing with HD in the form of education, support groups and research for medications that are helping so many people live with this disease.  Hope comes in the form of continued research in hopes that one day there might be a cure that will end the curse that is Huntington's Disease. They also work to educate the public and medical personnel about this dreaded disease.

What would eventually become the HDSA started as a small group organized by the widow of folk singer Woody Guthrie after he lost his battle to this awful disease. Much research has gone into determining the markers for this disease, where the gene that causes it was located and even discovery of medications that have had significant impact on the life of the person living with HD. A lot of the funding for this research is made possible by the Huntington's Disease Society of America. But, even though a lot of research has yielded a lot of useful information and the formation of many drugs, we haven't found a way to end the spread of this disease. So, there is still a lot of work to do. Still a lot of research that needs to be done. Still a lot of drug trials that need to be conducted. The HDSA needs the help and support of others to make these things a reality.

To help fund the research and support they provide to families is by hosting a walks across the country. The Dallas/Fort Worth area walk is taking place on October 19th this year. Would you consider sponsoring Cheryl's Kids and the HDSA in their continuing effort to provide Help for Today, Hope for Tomorrow. You can sponsoring us by making a donation at Cheryl's Kids. With your help we might one day put an end to this disease that has had an affect on so many of our family.

 

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