There is a new challenge out there that was spawned of the ALS Ice Bucket challenge. Only this one is to raise awareness for HD.
First a little about the ALS Ice bucket challenge… the thought process behind the bucket of ice is because it gives you a temporary freezing of the nerves to simulate what a person with ALS feels like all the time. Just a brief second of that feeling can give you a bit of understanding of what a person that is living with ALS deals with. That short little sample is enough to tell you that you don’t want it and to sympathize with someone that does have it. This is definitely a worthy cause and I applaud the effort to help raise awareness for ALS.
When I first heard about the ice bucket challenge, I thought we need something like that for Huntington’s Disease. Especially considering the recognition the ice bucket challenge has gotten. I just couldn’t think of the right thing to do. Since HD can impact each person differently, there is not one way to simulate the feeling of having HD. How best can you make a person feel the uncontrollable chorea that affects a person? How can you simulate the lack of coordination or cognitive ability that can be common of a person battling HD? There really isn’t a way to do that.
It looks like I wasn’t the only one that was thinking about it, either. A couple of days ago, somebody came up with the Pie in the Face for HD challenge. It is a fun way to help raise awareness for Huntington’s Disease and to help to wonderful organizations that support people who live with HD. The challenge: Option #1: Take a pie made out of whip cream in the face and donate $1.00 to the Huntington’s Disease Society of America (HDSA) or WeHaveaFace.org. within 24 hours of being nominated. Option #2 Donate $100 to the Huntington’s Disease Society of America (HDSA) or WeHaveaFace.org. within 24 hours of being nominated. Then nominate up to 5 people to do the same. Post your pictures on You Tube or the Facebook HD Pie In The Face Challenge page.
It looks like I wasn’t the only one that was thinking about it, either. A couple of days ago, somebody came up with the Pie in the Face for HD challenge. It is a fun way to help raise awareness for Huntington’s Disease and to help to wonderful organizations that support people who live with HD. The challenge: Option #1: Take a pie made out of whip cream in the face and donate $1.00 to the Huntington’s Disease Society of America (HDSA) or WeHaveaFace.org. within 24 hours of being nominated. Option #2 Donate $100 to the Huntington’s Disease Society of America (HDSA) or WeHaveaFace.org. within 24 hours of being nominated. Then nominate up to 5 people to do the same. Post your pictures on You Tube or the Facebook HD Pie In The Face Challenge page.
I have an extreme dislike for whip cream. I don’t like the way it tastes and am not a fan of the texture of it, either. I can tolerate in my milk shake if it is mixed up well so that I can’t really taste it, but plain? How can you do that? Well, this is one thing that will make me suck it up and deal. I am all for anything that will raise awareness for Huntington’s Disease. It is a cause that is very near and dear to my heart, after all. And I will make a donation to the
I will tell you that the HDSA funds research for Huntington’s Disease and helps families struggling to survive with HD. They are non-profit organization that is tax deductible. WeHaveAFace.org has the mission simply to raise awareness of the disease by producing a documentary they are putting together to further that effort. They are not a non-profit and so your donation is not tax deductible. You can chose to support whichever one you choose but Robert and I will be supporting the HDSA. To donate to the HDSA, visit their webpage. To support WeHaveAFace.org, you can visit We Have a Face to learn how to donate.
The coolest thing about this? James Franco has already retweeted it when someone challenged him. Tim McGraw has been challenged, too. I hope it catches on as much as the Ice Bucket Challenge did so that we can raise awareness of this disease and its affects it has on a person. Plus, if it raises money for the HDSA, I am an even happier camper.
If you are nominated by me, Robert, or anybody else, I hope you will consider it and take the challenge and nominate your own people. Then, post your video or picture on your Facebook page and on the HD Pie in the Face Facebook page to using #Pieinetheface4HD. Let’s all raise awareness and some money for Huntington's Disease.
WeHaveAFace.org is a non profit charity. Yes our funds also go not only to raise awareness but also we help families in crisis financially and we donate to research. The only difference between us and the HDSA is that 100% of all funds raised go directly to the cause, no funds are used for salaries. If you look at the six figure salaries they get you may think twice before donating to them
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